Endo Sisters East Africa Foundation is a group that has been formed with the vision of keeping hope alive for endometriosis (endo) warriors. Endometriosis is a women’s condition where tissue similar to the lining of the uterus is found elsewhere in the body – mainly in the abdominal cavity thus causing chronic pelvic pain, fatigue, heavy bleeding and infertility.
The tag line of Endo Sisters East Africa is ‘start the conversation’. It is supported by a #YellowNailsMovement campaign that aims to create a visual identifier for endometriosis in East Africa through yellow nails and yellow ribbons.
Approximately 1 out of every 10 women of childbearing age have endometriosis and 176 million women worldwide live with endometriosis. Our overall intended outcome is to see an environment in Kenya where endometriosis is included in the reproductive health agenda. This should be evidenced at the very minimum by the availability of gynecologists’ (qualified to undertake laparoscopic surgery) in each of the 47 counties level 5 hospitals. The output is expected to be increased access (number of women accessing medical care) and lowered costs (consultation, medication, and laparoscopy) in respect to endometriosis treatment and management in Kenya. At Endo Sisters East Africa Foundation, we continue to actively create awareness among young girls and adolescents and influence the Education sector through both our Endometriosis training and outreach program.
In terms of our regional East Africa focus, we are currently engaged in talks and exploring various collaboration opportunities with organizations in the East African region to help advance the agenda on endometriosis awareness.