Programmes

Adolescent Awareness Training
  1. Adolescent Training

Aim to shorten the diagnosis period of endometriosis in girls and young women (adolescents). Diagnosis should not extend beyond the recommended 10 year diagnostic period prescribed by the Endometriosis Foundation of America.

Goal: Ensure we conduct a minimum of 5 endometriosis awareness outreach trainings targeting adolescents on endometriosis per year.  

Gyneacological Visits

2. Gynecological Visits

Promote a culture of early visitation to a gynecologist for adolescent girls who are already experiencing a lot of pain with their periods.

Goal: An increase of 10% annually in visitation by teens to gynecologists to seek out more information and diagnosis.

Support Group Program

3. Support Program

Provide emotional support for women living with endometriosis in terms of providing a safe space and hosting discussion forums.

Goal: Encourage sharing learning experiences by women to other women (endo sisters) on what works, what doesn’t and how to deal with uncommon issues. Evidenced by 80% of member participation in group online interactions per year, quarterly meetings and holding of 2 discussion forums per year. 

Collaboration and Advocacy

4. Collaboration and Advocacy

Collaborate with other stakeholders such as gynecologists, researchers, drug manufacturing companies, common interest organizations and government towards improving the landscape on endometriosis awareness, diagnosis, treatment and management.

Goal: Engage in at least 3 collaborative or advocacy initiatives per year to ensure we ‘continue the conversation’.